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From: one_wordfaithgrace@yahoo.com
Date: 03 Mar 2003
Time: 16:07:53 -0500
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Hello all. Just found this site and find it interesting in that no one here seems to talk about my diagnosis (see subject). I have suffered (read SUFFERED) for about a year with low back pain. I went first to a neurologist, then to a pain clinic and finally to a orthopedic surgeon. In reflection, absolutely none of these 'professionals' had a clue about what was wrong -- though all of them were interested in sometype of L5-S1 surgery. They were ALL wrong and if they had actually taken the time to actually touch me while examining me -- instead of relying on technology to do their work -- they might have found what was wrong on their own. I have had 2 MRI's and 4 spinal blocks in the past year; none of which did anything except separate me from my hard earned money. About a month ago, I went back to my Primary Care Physician... totally frustrated. She suggested a different pain doctor... one who she had heard did 'non-standard' types of treatment. I decided to try him. I mean, what could I possibly lose? This doctor is a pain specialist and a psychiatrist to boot. He gave me the most thorough examination I have ever had. He actually put hands to patient and discovered some things that I didn't know and that never had been discussed, suggested or found by any other physician. Essentially, when he touched the area around T-12, L1, he almost had to pull me off of the ceiling. I had no idea it was so sensitive there. T11, T12, was almost as bad. What has been happening is that ALL of the pain I was having in my lower back was being referred. In 10 minutes, this new doctor had found what three doctors and all of there technology couldn't find. He used some interesting charts... I was a LPN for 7 years and now am a Pharmacy Technician... I understood a great deal of what he was talking about. Anyway, he suggested some injections in the facet joints of the aforementioned locations. I had them done and after they were done, he did some accupuncture with electostim at those same sites. He then asked me to stand. Something was different... infact, VERY different. Very little pain!! I walked in as a person completely bent over and walked out of his office at my normal 5'6" height. I came home and knelt and thanked God for all of His guidance and cried for about 20 minutes. I've had some setbacks... massage therapy isn't for me. But in general, I am so much improved that I don't know what to do with myself. I had almost committed suicide twice and was on Oxycontin and Actiq suckers -- and they NEVER totally relieved the pain! Now, I am down to about one Percocet 7.5/500 a day and will be weaning myself off of it in the next couple of days. The relief is incredible! The new pain doc says that I will in the end experience about 80% relief. Further, he states that about 20% is permanent -- probably due to the fact that it was untreated for so long. Also, in his opinion, I will probably need treatments off and on for the rest of my life. Moving to Phoenix, AZ soon... does anyone know someone down there who is familiar with this syndrome? So... here I am. I have gone back to the original three doctors who treated me. I have left them copies of the following web site. I hope an pray that both doctors and patients will find it useful. You may have to 'cut and paste' it in your browser -- it is kind of long. However, after reading it, there is NO QUESTION that this is what I have suffered from. I have all of the symptoms described. I thank God and His mercy for leading me to help. If you should have any questions or any of this helps you, feel free to write me at any time. Sincerly, John Blackwell West Valley City, Utah

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